Horrible Week

WOW!!!!!!!What can I say but that. We have never been so exhausted in all of our lives. Round 4 was great as far as nausea and being sick was concerned but otherwise it was definitely the worst. Monday, Michael's counts hit the bottom in white blood counts, hemoglobin, platelets, and electrolytes. You don't know what counts do until you saw the Wolfman this week. He actually looked spooky. White lips, etc. Had no color in his complexion whatsoever. So fatigued he could hardly walk. Thought the 2 units of blood and 6 units of platelets would energize him some on Tuesday night, but we ended up in the Emergency Center. Had a reaction from the first bag of blood. Was there until about 2:30am Wednesday morning and had to be back to the hospital at 6:30 for a CT Scan and PET Scan. Felt like I was in 'Hades' from about 2:00 on that afternoon due to insurance company refusal to certify the PET Scan for which he was injected at 1:00pm. Finally got home to get something to eat and some sleep about 4:30pm. We had blood work done today and platelet counts are still only 12 and we are not allowed to leave Houston until they reach 50. Our car was packed ready to head out, but guess we will stay until they are 50....we might get an extra day at home once they reach 50. We hope to see you all real soon. We will be going back to the hospital today for some more platelets and Michael has been placed in a trial study for platelet count. They will start him on new medication today to keep platelets from dropping so low and also be given an injection for them to monitor in a trial study. We will be making cancer history hopefully.....Dr. Ravi did not have the photos of the scans yet, but said he had been given a good report on how they had been pre-reported. Sounds Good!
Love to all....pray for COUNTS to go UP UP UP UP!

1 comment:

  1. We understand all to well the "Count Roller-Coaster." Praying for a quick rebound in counts and spirits.

    The Chumbleys
    Prague, Czech Republic

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