We started our new round of chemo yesterday in Wichita Falls at the Texoma Cancer Center. Saw our Wichita Falls oncologist and then to chemo. Received word that the MRI taken last Thursday did not show any cancer in the knee. We are so thankful. Started the oral chemo of Temador and then through IV's we got the Ifosfamide, Irinotecan, and Vinicristine. The only new one is the Temador and we think maybe it is the one that is causing Michael's loss of appetite. Yesterday was a rough one, but think the sickness was from them having to try to hit a vein so many times before they actually got one that wouldn't leak. The iv chemo causes killing of the tissue around the place of leakage if it leaks, so we definitely have to be careful so that the iv doesn't leak.
We are so thankful that we found the new little activation of the sarcoma when we did as we can get a handle on it.
We will be making daily trips to Wichita Falls Monday through Friday of this week, next week and then will have a couple of weeks off before we start the next cycle. We are scheduled to go back for scans the end of September, but will probably have to reschedule since we are going to have two weeks off chemo instead of one as planned.
Thursday, August 12, 2010
Well, the CT Scan was done this morning to see about the situation in Michael's right let. We had it done in Wichita Falls and they will mail it to Houston for Dr. Ravi and the radiologist there to read it. We are to begin round 1 of 2 of the new chemo on Monday if we get the oral chemo pills. So far they have not been ordered or shipped to us. I guess i am just an over anxious mom wanting to get the ball rolling to kill out this stuff.....I am working very hard in trying to swallow my pride for this weekend....Michael has asked to do several things and I am really not comfortable in doing some of them, but am trying to swallow my pride so that my son can do some things that other boys his age have done. Please pray that God will give me some peace and allow me to swallow my pride and let my son experience some things he wants to do.
I will tell you about it next week. It is a surprise for Michael so will have to wait until it has happened.
Terri
I will tell you about it next week. It is a surprise for Michael so will have to wait until it has happened.
Terri
Friday, August 6, 2010
We traveled to Houston on Wednesday, August 4, 2010 for scans. We were 300 miles from home and received a call from MDACC that BCBSTX would not approve the PET Scan that our oncologist had ordered. They would approve a CT Scan, but not the PET Scan......cheap insurance company! We had the CT Scan last night about 8:00pm and when Michael came out of the scan, he told me, "Mom I just feel like something is wrong." Don't know if he heard them talking about the scan or what,but he was definitely a little worried. We met with Dr. Ravi this morning and he advised that the scan showed some active sarcoma in the pelvis area again and we told him about the on and off pain Michael had experienced in his right knee area. He immediately went to schedule a MRI for that leg, but couldn't get one done until next Friday, August 13, 2010. So we got a x ray of the knee and he wrote orders for us to get it done in Wichita Falls next week and to start chemo again asap. So we faxed the orders to Dr. Reddy in Wichita Falls to start asap. We have been on the mountain top for the past 3 1/2 months, so God saw that we were a little less dependent on Him and thought we needed some discipline. We are continuing to trust in Him for another battle and know that He is in control.
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